Health Status, Health Perceptions

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Reliability

Validity

Minimal Clinically Significant Difference

References

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Questions on Life Satisfaction - Cystic Fibrosis (FLZM -CF)

Name of Questionnaire

Questions of Life Satisfaction-Cystic Fibrosis (FLZ^M-CF)

Description

A disease specific life satisfaction instrument, to assess cystic fibrosis specific life satisfaction in the prior 4 weeks. Developed for use by adolescent (age = 16 years) and adult patients with a diagnosis of cystic fibrosis

Developer

L Goldbeck, TG Schmitz, G Henrich, PHerschbach

Address

L. Goldbech
University Clinic of Child and Adolescent
Psychiatry/Psychotherapy
SteinhÖvestr. 5
D89075 Ulm
Germany

E-mail

lutz.goldbeck@medizin.uni-ulm.de

Cost & availability

Instrument is published as an appendix (1)

Administration

Self-administered

Time to complete

5 minutes

Number of items

Domains & categories

9 domains and 1 summary score

Name of categories/domains

Nine dimensions of CF life satisfaction: breathing difficulties/coughing, abdominal pain/digestive trouble, eating, sleep, routine therapy, adherence to daily therapy, significance for others, understanding, and free from disadvantage

Scaling of items

Subjective importance of each dimension on a 5-point scale, from 1 (not important) to 5 (extremely important)
Prescent satsifaction with each the dimensions on a 5-point scale, from 1 (dissatisfied) to 5 (very satisfied)

Scoring

Scores for each section and a total score. Weighted scores for each dimension domains is calculated using the following formula: weighted satisfaction = (importance rating-1) x [(2 x satisfaction rating)-5]

Summary score is calculated by summing the 9 weighted scores. Item specific weighted scores range from -12 to +20. The summary score ranges from -112 to 180. Higher scores indicate higher satisfaction with health status

Reliability

Test-retest/reproducibility: r_tt=.69 ⁴
Internal consistency: Reported ¹

Validity

Convergent validity shown with significant correlations with the general health summary score and the general life satisfaction scores of the FLZ^M. Significant correlations have been documented between total score and measure of disease activity (FEV₁) but not body mass index.¹

Responsiveness

Participants of inpatient rehabilitation programs show a significant increase in FLZ^M-C scores.³ Discriminant ability has been noted with differences in patient groups (FEV₁> 70% of predicted compared to FEV₁; = 70; heart lung transplant recipents compared to non recipients). ¹

Research use

Reported.¹ The generic instrument (FLZ^M) has been reported in subjects with CF^1,2 and in patient with inflammatory bowel disease.³ The FLZ^M-CF has been used with CF-patients in an evaluation of an inpatient rehabilition program⁶ and in a longitudinal study with CF-outpatients.⁴

Clinical use

Not reported.

Language

Original: German

Translations: English (FLZ^M-CF)

References

Goldbeck L, Schmitz T.G., Henrich G, Herschbach P. Questions on life satisfaction for adolescents and adults with cystic fibrosis. Chest. 2003;123:42-48.
Goldbeck L, and Schmitz T.G. Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: the 36-item short form health survey, the quality of life profile for chronic diseases, and the questions on life satisfaction. Qual Life Res. 2001;10:23-36.
Goldbeck L, and Schmitz TG. Monitoring quality of life in adolescent and adult outpatients with CF: feasibility and first longitudinal results Submitted.
Janke KH, Raible A, Bauer M, Clemens P, Meisner C, Hauser W, Steder-Neukamm U, Henrich G, Gregor M, Herschbach P, Klump B. Questions on life satisfaction (FLZ(M) in inflammatory bowel disease. Int. J. Colorectal Dis. Oct. 2003 [Epub ahead of print].
Schmitz TG, Henrich G, Goldbeck L. Alters. [Quality of life with cystic fibrosis--aspects of age and gender] Klin Padiatr. 2006 Jan-Feb;218(1):7-12. German.
Schmitz TG, and Goldbeck L. Effects of inpatient rehabilitation programmes on quality of life with Cystic Fibrosis. Health Qual Life Outcomes. 2006 Feb 3;4:8.

Date of information

January 2005