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Pediatric Asthma Caregiver's Quality of Life QuestionnaireName of QuestionnairePediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) DescriptionThe PACQLQ is designed to measure the limitations and anxieties faced by caregivers of children with asthma. DeveloperEF Juniper, GH Guyatt, DH Feeny, PJ Ferrie, LE Griffith, M Townsend AddressElizabeth Juniper MCSP Msc Cost & availabilityContact E Juniper for permission and information. AdministrationSelf Time to completeNot reported Number of items13 Domains & categories2 Name of categories/domainsActivity limitations (4 items), emotional function (9 items) Scaling of items7-point Likert scales, with 1 indicating severe impairment and 7 indicating no impairment ScoringDomains scores are calculated as the mean score across items in that domain. The overall score is the mean score across all items. Higher scores indicate better quality of life. Reliability
ValidityConstruct validity shown through moderate relationships between both PACQLQ domains and caregiver perception of change in child's asthma and clinical asthma control. Moderate to strong correlations were found between the PACQLQ and caregiver burden of illness 1 . ResponsivenessThere were significant differences between scores (overall, both domains) of stable caregivers and those whose HRQL changed between assessments (p=0.0003) 1 . Minimally important differenceA change of 0.5 in a domain or total score is considered clinically important. Research useNot reported. Clinical useNot reported. LanguageOriginal: English (Canada) More than 30 translations are available; please see Professor Juniper's website for a complete list. CommentsSample size estimates are included, based on the finding of a 0.5 change in score as clinically important. References
Date of informationMarch 1999 |
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