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Recent Abstracts

Questions on Life Satisfaction - Cystic Fibrosis (FLZM -CF)

Name of Questionnaire

Questions of Life Satisfaction-Cystic Fibrosis (FLZM-CF)


A disease specific life satisfaction instrument, to assess cystic fibrosis specific life satisfaction in the prior 4 weeks. Developed for use by adolescent (age = 16 years) and adult patients with a diagnosis of cystic fibrosis


L Goldbeck, TG Schmitz, G Henrich, PHerschbach


L. Goldbech
University Clinic of Child and Adolescent
SteinhÖvestr. 5
D89075 Ulm


Cost & availability

Instrument is published as an appendix (1)



Time to complete

5 minutes

Number of items


Domains & categories

9 domains and 1 summary score

Name of categories/domains

Nine dimensions of CF life satisfaction: breathing difficulties/coughing, abdominal pain/digestive trouble, eating, sleep, routine therapy, adherence to daily therapy, significance for others, understanding, and free from disadvantage

Scaling of items

  • Subjective importance of each dimension on a 5-point scale, from 1 (not important) to 5 (extremely important)
  • Prescent satsifaction with each the dimensions on a 5-point scale, from 1 (dissatisfied) to 5 (very satisfied)


Scores for each section and a total score. Weighted scores for each dimension domains is calculated using the following formula: weighted satisfaction = (importance rating-1) x [(2 x satisfaction rating)-5]

Summary score is calculated by summing the 9 weighted scores. Item specific weighted scores range from -12 to +20. The summary score ranges from -112 to 180. Higher scores indicate higher satisfaction with health status


  • Test-retest/reproducibility: rtt=.69 4
  • Internal consistency: Reported 1


Convergent validity shown with significant correlations with the general health summary score and the general life satisfaction scores of the FLZM. Significant correlations have been documented between total score and measure of disease activity (FEV1) but not body mass index.1


Participants of inpatient rehabilitation programs show a significant increase in FLZM-C scores.3 Discriminant ability has been noted with differences in patient groups (FEV1> 70% of predicted compared to FEV1; = 70; heart lung transplant recipents compared to non recipients). 1

Research use

Reported.1 The generic instrument (FLZM) has been reported in subjects with CF1,2 and in patient with inflammatory bowel disease.3 The FLZM-CF has been used with CF-patients in an evaluation of an inpatient rehabilition program6 and in a longitudinal study with CF-outpatients.4

Clinical use

Not reported.


Original: German

Translations: English (FLZM-CF)


  1. Goldbeck L, Schmitz T.G., Henrich G, Herschbach P. Questions on life satisfaction for adolescents and adults with cystic fibrosis. Chest. 2003;123:42-48.
  2. Goldbeck L, and Schmitz T.G. Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: the 36-item short form health survey, the quality of life profile for chronic diseases, and the questions on life satisfaction. Qual Life Res. 2001;10:23-36.
  3. Goldbeck L, and Schmitz TG. Monitoring quality of life in adolescent and adult outpatients with CF: feasibility and first longitudinal results Submitted.
  4. Janke KH, Raible A, Bauer M, Clemens P, Meisner C, Hauser W, Steder-Neukamm U, Henrich G, Gregor M, Herschbach P, Klump B. Questions on life satisfaction (FLZ(M) in inflammatory bowel disease. Int. J. Colorectal Dis. Oct. 2003 [Epub ahead of print].
  5. Schmitz TG, Henrich G, Goldbeck L. Alters. [Quality of life with cystic fibrosis--aspects of age and gender] Klin Padiatr. 2006 Jan-Feb;218(1):7-12. German.
  6. Schmitz TG, and Goldbeck L. Effects of inpatient rehabilitation programmes on quality of life with Cystic Fibrosis. Health Qual Life Outcomes. 2006 Feb 3;4:8.

Date of information

January 2005

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